HEY THERE
we are trying to have September named as Chiari and Syringmyelia month. We hope to have it done by the Conquer Chiari Walk across America on September 20th.
Also, I cannot get my topomax, the insurance company is saying 'no' to it. Blah to them!
I got the pharmacy working on it, and the doctor's office working on it, and I am working on it.
Tuesday, August 12, 2008
Saturday, August 02, 2008
NY-TCI
It's Saturday the 2nd of August, yesterday I spent the morning at Manhasset Diagnostic Imaging, MRI'd from top to bottom.
It was kinda cool, when I checked out, with the payment/insurance window, the lady says "insurance?" and I say "Medicare" and the insurance lady says "have a nice day" WHOO HOO! I have never ever had it that EASY!
So we have a quick break and head to down town Great Neck and find Bruce's(which btw is a great place to eat) we order a bowl of lentil soup, and of course you get the plate of rolls, and a plate of goodies, like frosted brownies, and other assorted goodies! They also give you a bowl of coleslaw which is pretty dang tasty!
So we leave Bruce's and head to TCI. I am assigned a new nurse, Jungut(sp) nice nurse, but kind of hard to understand. I am taken back at 100PM and I am there for over an hour with questions.
Then I meet Dr Shelat, he is a very nice doc. He says the fusion is good, the chiari is good(well as good as it can be) then discusses the bottom end. That not so good. I have occult tight filum, and he proceeds to do the physical tests on me.
Then I try the heel/toe walking. That was semi-ok. Then I do the one foot in front of the other, which I CANNOT do. Well, I can, but not well. My balance is shot! I finally bent my knees, and tried to walk the line that way. I got a little further.
All in all, a good visit. I went for answers and you always get answers at TCI.
So we are off to NY city for the night then to Newark to fly back to Seattle.
Oh and I have some new prescriptions for the Pronex neck stretcher, the new improved neck brace. Also he thinks I should try topomax for my headaches.
That's it for now.
It was kinda cool, when I checked out, with the payment/insurance window, the lady says "insurance?" and I say "Medicare" and the insurance lady says "have a nice day" WHOO HOO! I have never ever had it that EASY!
So we have a quick break and head to down town Great Neck and find Bruce's(which btw is a great place to eat) we order a bowl of lentil soup, and of course you get the plate of rolls, and a plate of goodies, like frosted brownies, and other assorted goodies! They also give you a bowl of coleslaw which is pretty dang tasty!
So we leave Bruce's and head to TCI. I am assigned a new nurse, Jungut(sp) nice nurse, but kind of hard to understand. I am taken back at 100PM and I am there for over an hour with questions.
Then I meet Dr Shelat, he is a very nice doc. He says the fusion is good, the chiari is good(well as good as it can be) then discusses the bottom end. That not so good. I have occult tight filum, and he proceeds to do the physical tests on me.
Then I try the heel/toe walking. That was semi-ok. Then I do the one foot in front of the other, which I CANNOT do. Well, I can, but not well. My balance is shot! I finally bent my knees, and tried to walk the line that way. I got a little further.
All in all, a good visit. I went for answers and you always get answers at TCI.
So we are off to NY city for the night then to Newark to fly back to Seattle.
Oh and I have some new prescriptions for the Pronex neck stretcher, the new improved neck brace. Also he thinks I should try topomax for my headaches.
That's it for now.
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