Good Evening World! Well, life has changed so much. My dear husband, Dennis, died of cancer on April 20, 2019. I miss him so. The last year of his life was filled with a MVA and diagnosis of lymphoma 2 months after the head-on car accident. The other guy's fault. Dennis had trouble walking on September 12, 2019 - I rushed him to Evergreen Hospital - where he didn't leave and was transported to UW Montlake. He ended up having a big surgery to remove tumors from his spine. He spent 3 weeks in hospital and returned home at the end of October 2019. He received his first chemo treatment in hospital. The next months were filled with trips to Seattle Cancer Care Alliance. When Dennis started having falls and cognitive issues - his doctor said that palliative care was the next step. Dr Smith said "get your affairs in order" I was in shock. How could this be? Dennis and I were married for 38 years and together for 40 years. Father Vu renewed our marriage vows at our house days before Dennis passed. Whew... this was hard to write and relive this time. I miss him so. So... here goes with what has happened in the interim from when I first started this blog. It's more of a journal - since I don't write very well. I do type just fine! Matt and Stephanie married, bought a house and had two boys Ryan (b june 25 2015) and Daniel (b 12/31/2016) In January 2020 - Matt and Stephanie seperated. They are going through a divorce and the boys are here half time. Dennis Daniel and Britt are still together; making a beautiful life for their 3 girls. Louisa, Mary and Margaret. They live in Sammamish. I don't get to see them as much as I would like.. I'll update more when I have more time. LOTS to catch up on.

Check out Matt and Stephanie's Wedding website:

Check out my Wedding website:


Dennis and my son Matt is getting married on August 10, 2013! Here is their website - I'm so excited and Matt and Steph are so happy together!

November 10, 2010

November! I cannot believe it's November already! I'm in Physical Therapy and I'm getting better every day. I'm so glad the hardware is out of my head. It goes to show that the hardware and the fusion from my skull to C-4 was oh so wrong for me.

I haven't had a CM headache - I am getting range back and I love my Neurosurgeon - and I love my physical therapist, Karol at Novelty Hill Physical Therapy.
Now to get my health back to where I was in 2006 - where I should of been IF I just had the Posterior Fossa Decompression. There is some emotional issues and anger - I didn't have the chance nor the decision making process to decide about the extraction fusion. That still makes me angry - how am I to ever know if the PFD would've of ever worked now? There is a level of frustration - four years PLUS of pain and suffering = would I have returned to work? Four years of SSDI? Sleepless night? Anxiety and panic disorder? No more house - No more retirement benefit... so much loss and nothing to show for it. I'm back to less than square one because of THEM and they have EVERYTHING - and they convinced me that I NEEDED IT. AND PT and other medical professionals say I didn't have EDS - I don't believe any of them anymore.
Don't believe - question authority - and remember you cannot go back if you are cut upon.

another day in the life of me

okay... surgery with Dr Rod Oskouian at Swedish Hospital in Seattle. He took out all the posts and the fusion to C4 from the posterior. Then he fused me from C4 to C5.

I went in Friday the 16 of July and checked out on Monday 19 of July. Quick trip, eh? MUCH better than the first time getting this Chiari thing done!!

Here's some pictures of the hardware taken out of my head.

Holiday! Merry Christmas

Well, here in the PacNW, there has been tons of snow, cold weather.

Allie the new dog loves, loves the snow. She is a pretty good helper dog when I fell in the airport about two weeks ago. No one else around, called Allie over(she looked very surprised that I had fell) and then used 'brace' to help me up.

Too cute for words...

Too cute for words...
Originally uploaded by keri.meyers

Another of my baby GD Louisa, isn't she a doll?

Swing Lulu, Swing!

Swing Lulu, Swing!
Originally uploaded by keri.meyers

my baby girl Louisa!

Baby girl! Louisa !

HEY THERE

we are trying to have September named as Chiari and Syringmyelia month. We hope to have it done by the Conquer Chiari Walk across America on September 20th.

Also, I cannot get my topomax, the insurance company is saying 'no' to it. Blah to them!

I got the pharmacy working on it, and the doctor's office working on it, and I am working on it.