Monday, January 21, 2013

Check out Matt and Stephanie's Wedding website:

Check out my Wedding website:

Dennis and my son Matt is getting married on August 10, 2013! Here is their website - I'm so excited and Matt and Steph are so happy together!

Wednesday, November 10, 2010

November 10, 2010

November! I cannot believe it's November already! I'm in Physical Therapy and I'm getting better every day. I'm so glad the hardware is out of my head. It goes to show that the hardware and the fusion from my skull to C-4 was oh so wrong for me.

I haven't had a CM headache - I am getting range back and I love my Neurosurgeon - and I love my physical therapist, Karol at Novelty Hill Physical Therapy.
Now to get my health back to where I was in 2006 - where I should of been IF I just had the Posterior Fossa Decompression. There is some emotional issues and anger - I didn't have the chance nor the decision making process to decide about the extraction fusion. That still makes me angry - how am I to ever know if the PFD would've of ever worked now? There is a level of frustration - four years PLUS of pain and suffering = would I have returned to work? Four years of SSDI? Sleepless night? Anxiety and panic disorder? No more house - No more retirement benefit... so much loss and nothing to show for it. I'm back to less than square one because of THEM and they have EVERYTHING - and they convinced me that I NEEDED IT. AND PT and other medical professionals say I didn't have EDS - I don't believe any of them anymore.
Don't believe - question authority - and remember you cannot go back if you are cut upon.

Wednesday, July 28, 2010

another day in the life of me

okay... surgery with Dr Rod Oskouian at Swedish Hospital in Seattle. He took out all the posts and the fusion to C4 from the posterior. Then he fused me from C4 to C5.

I went in Friday the 16 of July and checked out on Monday 19 of July. Quick trip, eh? MUCH better than the first time getting this Chiari thing done!!

Here's some pictures of the hardware taken out of my head.

Saturday, December 27, 2008

Holiday! Merry Christmas

Well, here in the PacNW, there has been tons of snow, cold weather.

Allie the new dog loves, loves the snow. She is a pretty good helper dog when I fell in the airport about two weeks ago. No one else around, called Allie over(she looked very surprised that I had fell) and then used 'brace' to help me up.

Friday, October 31, 2008

Too cute for words...

Too cute for words...
Originally uploaded by keri.meyers
Another of my baby GD Louisa, isn't she a doll?

Swing Lulu, Swing!

Swing Lulu, Swing!
Originally uploaded by keri.meyers
my baby girl Louisa!

Tuesday, August 12, 2008

Baby girl! Louisa !


we are trying to have September named as Chiari and Syringmyelia month. We hope to have it done by the Conquer Chiari Walk across America on September 20th.

Also, I cannot get my topomax, the insurance company is saying 'no' to it. Blah to them!

I got the pharmacy working on it, and the doctor's office working on it, and I am working on it.

Saturday, August 02, 2008


It's Saturday the 2nd of August, yesterday I spent the morning at Manhasset Diagnostic Imaging, MRI'd from top to bottom.
It was kinda cool, when I checked out, with the payment/insurance window, the lady says "insurance?" and I say "Medicare" and the insurance lady says "have a nice day" WHOO HOO! I have never ever had it that EASY!

So we have a quick break and head to down town Great Neck and find Bruce's(which btw is a great place to eat) we order a bowl of lentil soup, and of course you get the plate of rolls, and a plate of goodies, like frosted brownies, and other assorted goodies! They also give you a bowl of coleslaw which is pretty dang tasty!

So we leave Bruce's and head to TCI. I am assigned a new nurse, Jungut(sp) nice nurse, but kind of hard to understand. I am taken back at 100PM and I am there for over an hour with questions.

Then I meet Dr Shelat, he is a very nice doc. He says the fusion is good, the chiari is good(well as good as it can be) then discusses the bottom end. That not so good. I have occult tight filum, and he proceeds to do the physical tests on me.

Then I try the heel/toe walking. That was semi-ok. Then I do the one foot in front of the other, which I CANNOT do. Well, I can, but not well. My balance is shot! I finally bent my knees, and tried to walk the line that way. I got a little further.

All in all, a good visit. I went for answers and you always get answers at TCI.

So we are off to NY city for the night then to Newark to fly back to Seattle.

Oh and I have some new prescriptions for the Pronex neck stretcher, the new improved neck brace. Also he thinks I should try topomax for my headaches.

That's it for now.