Leaving today for the PacNW!

Leaving today for the PacNW!

We expect to leave tomorrow around 2PM, and Dennis says if I am not ready to leave, I have to fly to the next stop.

HAHAHA..I am going to surprise him and BE READY to go!

Okay day otherwise, taking my time, and hoping for lessened pain on the drive to Seattle.

Tuesday and the days after

Had my SSDI application yesterday, but didn't need all the medical documentation that I had with me.
Received my Residual Functioning paperwork from TCI, but while it looks promising on the SS front, it is my life, and to have all those restrictions really written down in black and white, well its depressing.
I guess I am doing the right thing.

Monday

Went and had my car detailed...and lil red looks fabulous.

Dennis was apologetic about yesterday morning, and when I got home, I went to bed for four hours and slept like a log. I just don't have the stamina to get much more oomph going on.

Dennis wanted an apology from me, and while I thought I didn't, I did apologize for the situation.

Thanks Keesha for talking to me yesterday. I am still thinking it through.

Massage today with Gayla, another "early out" employee from Alaska.

Not well today

I did pretty well yesterday, felt hopeful that perhaps turning the corner, but today back again.

WHY???
I am so tired of dealing with this, I cry because of the pain, wonder how far I can go, want to be there for my family, and be productive again.

Maybe preparing my mediation letter has got the best of me. I dunno. I wish I knew answers.

My legs/ankles/knees hurt. My back nec and head hurt.

I am going back to bed.

Friday 20Oct

So I didn't sleep well last night, I guess going over insurance paperwork and the denial letters isn't good for my sleep patterns, eh?
I need more information to process my mediation, and the person that is in charge of reviewing it, well I hope that his silence to my emails is because he is busy.

Driving down to Tucson today, looking forward to going someplace else!

Spoke with Sondra yesterday, and she sounded pretty good, but not getting the treatment she needs for CM/SM.
I wish her the very best!

ASAP meeting

Well, today is pretty good, met with others with CM and SM, and new members joined us. Chiarian moment though I got the time wrong, I thought it was 10AM, and it turned out it was 11AM. Sigh, at least I was on time!

Its interesting to see newly diagnosed people, that are in denial, and I think that one person got a rude awakening, that this IS life changing, and that medication...and treatment options have to be utilized.
Interesting..also I wish those that are successful in their treatment would STAY involved instead of taking from those and picking the times to be involved; ie when they are impacted from the symptoms.

Fairly good day today, just the normal head turning issues, and stiffness. Slept pretty well.

Spoke with Keesha today, and Dennis and I will go visit tomorrow in Tucson.

Thats it for now.

forgot to add

I cut and colored my hair a couple of days ago. A few days shy of the six month mark, but I really needed a lift. It is much shorter than I am accustomed to, but it needed to be done.
Color? The same as it ever was.

I feel like I am still recovering from yesterday, drained and short on patience with Dennis. Its too bad, but our communication isn't what its supposed to be. I try, and he is eternally the joker, and makes light of my situation and he hasn't a right to do this.

TG he doesn't read this! LOL!

Another day

I will try and be better with this, write more often.

Baking brownies today, got a denial letter from SSI, but that doesn't matter as I am trying for SSDI.
Jane my PT says that my goal of being able to lift 30# is NOT going to happen by January 2007. I hate having my hopes dashed. I don't want to work on the ground, I want to work in the air.
With taking medication, I know that my employment opportunities are limited for what field I want to be in. Air transportation. USair is where I am going to try for, but its not going to be the better paying job I had hoped for.
Also, working for an airline, I will have the chance to help more people with air transportation to get to the "good" doctors. Sigh. Still I am working toward the goal of getting back to work by 2007....hopefully.
The last session of PT knocked the stuffing out of me...was in tears for most of yesterday. Couldn't sleep even with the Rezorem.

Hopefully Dennis will drive me to Tucson to see Keesha on Friday. If not, I will drive myself!!

more later...

no sleep, bad day

Well, thought I would update and put pics of my x-rays here...going back to sleep once I get this done. Did not sleep well last night, 4 hours and pain from overdoing it at physical therapy.

Told by my PT that my dream of again working as flight attendant was just a dream.
I don't want to work on the ground.
Paim in ankles, legs, head, neck, back. Not good.