Monday, May 28, 2007
Sunday, December 17, 2006
u2 the saints are coming
Dennis says that Carol is going home soon..as soon as the infections clear. She cannot swallow, even with physical therapy. She can only eat ice chips. Its sad, because I believe that she will probably not live long. Its very sad.
My head hurts more since the brain swelling has gone down. The fusion anchors..whatever they are called, well when they get cold my head gets tender and hurt like the dickens.
I am going to Seattle tomorrow. Matt has been without power for a few days. The worst storm since the Inaugural Day storm, I think 12 years ago. That was bad, we were without power for four days. I finally gave up and drove till I found lights!
Matt is staying at Shelby's parent's house on the plateau.
Dennis and Brit are doing pretty well. They were shopping yesterday and called.
Sent out package to Jean and MA to Napa.
Dennis is up in Alaska right now.
My head hurts more since the brain swelling has gone down. The fusion anchors..whatever they are called, well when they get cold my head gets tender and hurt like the dickens.
I am going to Seattle tomorrow. Matt has been without power for a few days. The worst storm since the Inaugural Day storm, I think 12 years ago. That was bad, we were without power for four days. I finally gave up and drove till I found lights!
Matt is staying at Shelby's parent's house on the plateau.
Dennis and Brit are doing pretty well. They were shopping yesterday and called.
Sent out package to Jean and MA to Napa.
Dennis is up in Alaska right now.
Saturday, November 25, 2006
Dennis and Britt's wedding
On November 24, 2006; Dennis and Britt married. We are soo proud of them!
See their picture, and even though they got married in Evergreen Hospital in Kirkland, WA..Mom Carol was able to attend at her hospital while recovering from Meningintis. She is doing better but very proud of our children.
See their picture, and even though they got married in Evergreen Hospital in Kirkland, WA..Mom Carol was able to attend at her hospital while recovering from Meningintis. She is doing better but very proud of our children.
Saturday, November 04, 2006
Back in the NW
and working on Dennis and Brit's wedding. We met two nights ago with Carol and figured a lot of things out, the rehearsal dinner, Thanksgiving Day, and the wedding.
Wow. Now we have the rehearsal dinner, which we hadn't planned for, since Brit's sister(who is pregnant~high risk)and she just graciously bowed out, three weeks before the wedding.
So I meet with Oscar from the restaurant on Monday, I checked out the hotel that the out of town family is going to stay at, and lets see what else? Oh I got the dress, its very nice, and it was on sale! Lucky me. Just need a topper of some sort...hmm, more shopping which isn't my idea of fun and games.
Pain levels? Well, pretty high today, felt like hot oil was coursing in my veins of my legs instead of blood. Back still hurts. We are sleeping on an Aero-bed with a memory foam topper...seems to work pretty well.
Dennis left for AZ to check on things, and hopefully will be back about a week before the wedding.
The apartment is working out well.
I need to contact TCI regards billing, send out my mediation..but I had been waiting for one piece of information and they didn't receive it from Aetna either.
sigh.
Mass tomorrow with Dennis and Brit, downtown Seattle..might look after church for a topper for the dress.
more later
Wow. Now we have the rehearsal dinner, which we hadn't planned for, since Brit's sister(who is pregnant~high risk)and she just graciously bowed out, three weeks before the wedding.
So I meet with Oscar from the restaurant on Monday, I checked out the hotel that the out of town family is going to stay at, and lets see what else? Oh I got the dress, its very nice, and it was on sale! Lucky me. Just need a topper of some sort...hmm, more shopping which isn't my idea of fun and games.
Pain levels? Well, pretty high today, felt like hot oil was coursing in my veins of my legs instead of blood. Back still hurts. We are sleeping on an Aero-bed with a memory foam topper...seems to work pretty well.
Dennis left for AZ to check on things, and hopefully will be back about a week before the wedding.
The apartment is working out well.
I need to contact TCI regards billing, send out my mediation..but I had been waiting for one piece of information and they didn't receive it from Aetna either.
sigh.
Mass tomorrow with Dennis and Brit, downtown Seattle..might look after church for a topper for the dress.
more later
Thursday, October 26, 2006
Wednesday, October 25, 2006
Tuesday and the days after
Had my SSDI application yesterday, but didn't need all the medical documentation that I had with me.
Received my Residual Functioning paperwork from TCI, but while it looks promising on the SS front, it is my life, and to have all those restrictions really written down in black and white, well its depressing.
I guess I am doing the right thing.
Received my Residual Functioning paperwork from TCI, but while it looks promising on the SS front, it is my life, and to have all those restrictions really written down in black and white, well its depressing.
I guess I am doing the right thing.
Monday, October 23, 2006
Monday
Went and had my car detailed...and lil red looks fabulous.
Dennis was apologetic about yesterday morning, and when I got home, I went to bed for four hours and slept like a log. I just don't have the stamina to get much more oomph going on.
Dennis wanted an apology from me, and while I thought I didn't, I did apologize for the situation.
Thanks Keesha for talking to me yesterday. I am still thinking it through.
Massage today with Gayla, another "early out" employee from Alaska.
Dennis was apologetic about yesterday morning, and when I got home, I went to bed for four hours and slept like a log. I just don't have the stamina to get much more oomph going on.
Dennis wanted an apology from me, and while I thought I didn't, I did apologize for the situation.
Thanks Keesha for talking to me yesterday. I am still thinking it through.
Massage today with Gayla, another "early out" employee from Alaska.
Saturday, October 21, 2006
Not well today
I did pretty well yesterday, felt hopeful that perhaps turning the corner, but today back again.
WHY???
I am so tired of dealing with this, I cry because of the pain, wonder how far I can go, want to be there for my family, and be productive again.
Maybe preparing my mediation letter has got the best of me. I dunno. I wish I knew answers.
My legs/ankles/knees hurt. My back nec and head hurt.
I am going back to bed.
WHY???
I am so tired of dealing with this, I cry because of the pain, wonder how far I can go, want to be there for my family, and be productive again.
Maybe preparing my mediation letter has got the best of me. I dunno. I wish I knew answers.
My legs/ankles/knees hurt. My back nec and head hurt.
I am going back to bed.
Friday, October 20, 2006
Friday 20Oct
So I didn't sleep well last night, I guess going over insurance paperwork and the denial letters isn't good for my sleep patterns, eh?
I need more information to process my mediation, and the person that is in charge of reviewing it, well I hope that his silence to my emails is because he is busy.
Driving down to Tucson today, looking forward to going someplace else!
Spoke with Sondra yesterday, and she sounded pretty good, but not getting the treatment she needs for CM/SM.
I wish her the very best!
I need more information to process my mediation, and the person that is in charge of reviewing it, well I hope that his silence to my emails is because he is busy.
Driving down to Tucson today, looking forward to going someplace else!
Spoke with Sondra yesterday, and she sounded pretty good, but not getting the treatment she needs for CM/SM.
I wish her the very best!
Thursday, October 19, 2006
ASAP meeting
Well, today is pretty good, met with others with CM and SM, and new members joined us. Chiarian moment though I got the time wrong, I thought it was 10AM, and it turned out it was 11AM. Sigh, at least I was on time!
Its interesting to see newly diagnosed people, that are in denial, and I think that one person got a rude awakening, that this IS life changing, and that medication...and treatment options have to be utilized.
Interesting..also I wish those that are successful in their treatment would STAY involved instead of taking from those and picking the times to be involved; ie when they are impacted from the symptoms.
Fairly good day today, just the normal head turning issues, and stiffness. Slept pretty well.
Spoke with Keesha today, and Dennis and I will go visit tomorrow in Tucson.
Thats it for now.
Its interesting to see newly diagnosed people, that are in denial, and I think that one person got a rude awakening, that this IS life changing, and that medication...and treatment options have to be utilized.
Interesting..also I wish those that are successful in their treatment would STAY involved instead of taking from those and picking the times to be involved; ie when they are impacted from the symptoms.
Fairly good day today, just the normal head turning issues, and stiffness. Slept pretty well.
Spoke with Keesha today, and Dennis and I will go visit tomorrow in Tucson.
Thats it for now.
Wednesday, October 18, 2006
forgot to add
I cut and colored my hair a couple of days ago. A few days shy of the six month mark, but I really needed a lift. It is much shorter than I am accustomed to, but it needed to be done.
Color? The same as it ever was.
I feel like I am still recovering from yesterday, drained and short on patience with Dennis. Its too bad, but our communication isn't what its supposed to be. I try, and he is eternally the joker, and makes light of my situation and he hasn't a right to do this.
TG he doesn't read this! LOL!
Color? The same as it ever was.
I feel like I am still recovering from yesterday, drained and short on patience with Dennis. Its too bad, but our communication isn't what its supposed to be. I try, and he is eternally the joker, and makes light of my situation and he hasn't a right to do this.
TG he doesn't read this! LOL!
Another day
I will try and be better with this, write more often.
Baking brownies today, got a denial letter from SSI, but that doesn't matter as I am trying for SSDI.
Jane my PT says that my goal of being able to lift 30# is NOT going to happen by January 2007. I hate having my hopes dashed. I don't want to work on the ground, I want to work in the air.
With taking medication, I know that my employment opportunities are limited for what field I want to be in. Air transportation. USair is where I am going to try for, but its not going to be the better paying job I had hoped for.
Also, working for an airline, I will have the chance to help more people with air transportation to get to the "good" doctors. Sigh. Still I am working toward the goal of getting back to work by 2007....hopefully.
The last session of PT knocked the stuffing out of me...was in tears for most of yesterday. Couldn't sleep even with the Rezorem.
Hopefully Dennis will drive me to Tucson to see Keesha on Friday. If not,I will drive myself!!
more later...
Baking brownies today, got a denial letter from SSI, but that doesn't matter as I am trying for SSDI.
Jane my PT says that my goal of being able to lift 30# is NOT going to happen by January 2007. I hate having my hopes dashed. I don't want to work on the ground, I want to work in the air.
With taking medication, I know that my employment opportunities are limited for what field I want to be in. Air transportation. USair is where I am going to try for, but its not going to be the better paying job I had hoped for.
Also, working for an airline, I will have the chance to help more people with air transportation to get to the "good" doctors. Sigh. Still I am working toward the goal of getting back to work by 2007....hopefully.
The last session of PT knocked the stuffing out of me...was in tears for most of yesterday. Couldn't sleep even with the Rezorem.
Hopefully Dennis will drive me to Tucson to see Keesha on Friday. If not,
more later...
Tuesday, October 17, 2006
no sleep, bad day
Well, thought I would update and put pics of my x-rays here...going back to sleep once I get this done. Did not sleep well last night, 4 hours and pain from overdoing it at physical therapy.
Told by my PT that my dream of again working as flight attendant was just a dream.
I don't want to work on the ground.
Paim in ankles, legs, head, neck, back. Not good.
Told by my PT that my dream of again working as flight attendant was just a dream.
I don't want to work on the ground.
Paim in ankles, legs, head, neck, back. Not good.
Friday, September 01, 2006
September 1, 2006
Still in PT, had a rough day yesterday. On Wednesday used very light weights, but still had problems (1lb)and yesterday I needed ice all day. Spent most of the day in bed. Today we went went with no weights.
Hopefully I won't feel as bad tomorrow.
I got good news from Kris today in regards to Fonar. I am going to be a test study for their upright MRI's. They need a post-op candidate(chiarian) and I get their testing done for free. I hope and pray that my titanium plates and screws are acceptable to the testing!
I hope I can put my bracelets up here..and where did we get that money?? Weird. WF is on it now..
Dennis comes home on Sunday. YAY!!
Hopefully I won't feel as bad tomorrow.
I got good news from Kris today in regards to Fonar. I am going to be a test study for their upright MRI's. They need a post-op candidate(chiarian) and I get their testing done for free. I hope and pray that my titanium plates and screws are acceptable to the testing!
I hope I can put my bracelets up here..and where did we get that money?? Weird. WF is on it now..
Dennis comes home on Sunday. YAY!!
Sunday, August 27, 2006
Meltdown
Today(this morning and early afternoon) huge meltdown. The impact of my situation, my illness, my own depression hit me so hard. I am going to be responsible for my situation, acknowledge it, own it, realize it, not fear, and somehow, someway be comfortable with the "new" me. It scares me, but the realization is that this is the new me, and not something that is horrible, just the morphed into me.
I had a long talk with a great person today, Sarah, who encouraged me by her quiet way to apply for Social Security. There is no reason why I shouldn't. This EDS IS a nasty bugger. Ellen Quinn's words. And it is. My ankles, knees, and elbows hurt tonight.
My ROM is horrid, and PT is not good. Its a slow go. I e-mailed Dr B tonight, respectfully asking that he complete the ASAP form for doctors for patients that need to go for SSDI/SSI.
Please hold a good thought for me that things will go well. I hired Allsup for representation.
I had a long talk with a great person today, Sarah, who encouraged me by her quiet way to apply for Social Security. There is no reason why I shouldn't. This EDS IS a nasty bugger. Ellen Quinn's words. And it is. My ankles, knees, and elbows hurt tonight.
My ROM is horrid, and PT is not good. Its a slow go. I e-mailed Dr B tonight, respectfully asking that he complete the ASAP form for doctors for patients that need to go for SSDI/SSI.
Please hold a good thought for me that things will go well. I hired Allsup for representation.
Subscribe to:
Posts (Atom)
Posts
